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Gina has nearly 20 years experience working for patient advocacy organizations. She began her career in 2000 with the Muscular Dystrophy Association, serving as Event Coordinator and Area Director. In 2006, she joined the American Liver Foundation as Division Vice President. In 2012, she became an Executive Director at the Pulmonary Hypertension Association. Most recently, Gina served as the first Executive Director of the Alport Syndrome Foundation from 2016 through 2019. 


Certified Fund Raising Executive 

Certified Grant Writer from American Grant Writers Association

Certificate of Nonprofit Board Education from BoardSource

Certificate in Facilitating Strategy from Leadership Strategies

Certificate in Facilitation from Leadership Strategies

Certificate in Nonprofit Management from SUNY

Bachelor of Arts from Iona College


Member Forbes Nonprofit Council

Member CFRE Speakers Bureau

Master Trainer for Association of Fundraising Professionals

Speaker National Organization of Rare Disorders Plenary Session 2017

Speaker World Orphan Drug Congress 2019

Speaker National Organization of Rare Disorders 2019

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